Global assessment of palliative care need: serious health related suffering measurement methodology

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dc.catalogadoryvc
dc.contributor.authorXiaoxiao Kwete
dc.contributor.authorAfsan Bhadelia
dc.contributor.authorArreola-Ornelas, Héctor
dc.contributor.authorMéndez, Oscar
dc.contributor.authorWilliam E., Rosa
dc.contributor.authorConnor, Stephen
dc.contributor.authorDowning, Julia
dc.contributor.authorJamison, Dean
dc.contributor.authorWatkins, David
dc.contributor.authorCalderón, Renzo
dc.contributor.authorCleary, James
dc.contributor.authorFriedman, Joseph R.
dc.contributor.authorLima, Liliana de
dc.contributor.authorNtizimira, Christian
dc.contributor.authorPastrana, Tania
dc.contributor.authorPérez-Cruz, Pedro Emilio
dc.contributor.authorSpence, Dingle
dc.contributor.authorRajagopal, M. R.
dc.contributor.authorVargas Enciso, Valentina
dc.contributor.authorKrakauer, Eric
dc.contributor.authorRadbruch, Lukas
dc.contributor.authorMarie Knaul, Felicia
dc.date.accessioned2024-05-23T15:47:00Z
dc.date.available2024-05-23T15:47:00Z
dc.date.issued2024
dc.description.abstractContext: Inequities and gaps in palliative care access are a serious impediment to health systems especially in low- and middle-income countries and the accurate measurement of need across health conditions is a critical step to understanding and addressing the issue. Serious Health-related Suffering (SHS) is a novel methodology to measure the palliative care need and was originally developed by The Lancet Commission on Global Access to Palliative Care and Pain Relief. In 2015, the first iteration – SHS 1.0 – was estimated at over 61 million people worldwide experiencing at least 6 billion days of SHS annually as a result of life-limiting and life-threatening conditions. Objectives: In this paper, an updated methodology - SHS 2.0 - is presented building on the work of the Lancet Commission and detailing calculations, data requirements, limitations, and assumptions. Methods and Results: The updates to the original methodology focus on measuring the number of people who die with (decedents) or live with (non-decedents) SHS in a given year to assess the number of people in need of palliative care across health conditions and populations. Detail on the methodology for measuring the number of days of SHS that was pioneered by the Lancet Commission, is also shared, as this second measure is essential for determining the health system responses that are necessary to address palliative care need and must be a priority for future methodological work on SHS. Conclusions: The methodology encompasses opportunities for applying SHS to future policy making assessment of future research priorities particularly in light of the dearth of data from low- and middle-income countries, and sharing of directions for future work to develop SHS 3.0.
dc.fechaingreso.objetodigital2024-05-23
dc.fuente.origenORCID
dc.identifier.doi10.1016/j.jpainsymman.2024.03.027
dc.identifier.urihttp://dx.doi.org/10.1016/j.jpainsymman.2024.03.027
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/85758
dc.identifier.wosidWOS:001331304300001
dc.information.autorucEscuela de Medicina; Pérez Cruz, Pedro Emilio; 0000-0001-6265-6919; 4140
dc.language.isoen
dc.nota.accesocontenido completo
dc.revistaJournal of Pain and Symptom Management
dc.rightsacceso abierto
dc.rights.licenseCC BY-NC-ND Attribution-NonCommercial-NoDerivs 4.0 International
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectSerious health-related suffering
dc.subjectPalliative care
dc.subjectSuffering measurement
dc.subjectPalliative care need
dc.subject.ddc610
dc.subject.deweyMedicina y saludes_ES
dc.subject.ods03 Good health and well-being
dc.subject.odspa03 Salud y bienestar
dc.titleGlobal assessment of palliative care need: serious health related suffering measurement methodology
dc.typeartículo
sipa.codpersvinculados4140
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