Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations

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dc.contributor.authorMitchell, James W.
dc.contributor.authorSossi, Frieda
dc.contributor.authorMiller, Isabel
dc.contributor.authorJaber, Paula Blancarte
dc.contributor.authorDas-Gupta, Zofia
dc.contributor.authorFialho, Luz Sousa
dc.contributor.authorAmos, Action
dc.contributor.authorAustin, Joan K.
dc.contributor.authorBadzik, Scott
dc.contributor.authorBaker, Gus
dc.contributor.authorBen Zeev, Bruria
dc.contributor.authorBolton, Jeffrey
dc.contributor.authorChaplin, John E.
dc.contributor.authorCross, J. Helen
dc.contributor.authorChan, Derrick
dc.contributor.authorGericke, Christian A.
dc.contributor.authorHusain, Aatif M.
dc.contributor.authorLally, Lorraine
dc.contributor.authorMbugua, Sharon
dc.contributor.authorMegan, Cassidy
dc.contributor.authorMesa, Tomas
dc.contributor.authorNunez, Lilia
dc.contributor.authorvon Oertzen, Tim J.
dc.contributor.authorPerucca, Emilio
dc.contributor.authorPullen, Angie
dc.contributor.authorRonen, Gabriel M.
dc.contributor.authorSajatovic, Martha
dc.contributor.authorSingh, Mamta B.
dc.contributor.authorWilmshurst, Jo M.
dc.contributor.authorWollscheid, Leonie
dc.contributor.authorBerg, Anne T.
dc.date.accessioned2025-01-20T16:18:18Z
dc.date.available2025-01-20T16:18:18Z
dc.date.issued2024
dc.description.abstractAt present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. The International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy, and their representatives to develop minimum sets of standardized outcomes and outcome measurement methods for clinical practice. Using modified Delphi consensus methods with consecutive rounds of online voting over 12 months, a core set of outcomes and corresponding measurement tool packages to capture the outcomes were identified for infants, children, and adolescents with epilepsy. Consensus methods identified 20 core outcomes. In addition to the outcomes identified for the ICHOM Epilepsy adult standard set, behavioral, motor, and cognitive/language development outcomes were voted as essential for all infants and children with epilepsy. The proposed set of outcomes and measurement methods will facilitate the implementation of the use of patient-centered outcomes in daily practice.
dc.fuente.origenWOS
dc.identifier.doi10.1111/epi.17976
dc.identifier.eissn1528-1167
dc.identifier.issn0013-9580
dc.identifier.urihttps://doi.org/10.1111/epi.17976
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/90640
dc.identifier.wosidWOS:001224867900001
dc.issue.numero7
dc.language.isoen
dc.pagina.final1961
dc.pagina.inicio1938
dc.revistaEpilepsia
dc.rightsacceso restringido
dc.subjectepilepsy
dc.subjectoutcomes
dc.subjectpatient-reported outcome measures
dc.subjectquality improvement
dc.subjectvalue-based health care
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleDevelopment of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations
dc.typeartículo
dc.volumen65
sipa.indexWOS
sipa.trazabilidadWOS;2025-01-12
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