Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations

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dc.contributor.authorMitchell, James W.
dc.contributor.authorSossi, Frieda
dc.contributor.authorMiller, Isabel
dc.contributor.authorJaber, Paula Blancarte
dc.contributor.authorDas-Gupta, Zofia
dc.contributor.authorFialho, Luz Sousa
dc.contributor.authorAmos, Action
dc.contributor.authorAustin, Joan K.
dc.contributor.authorBadzik, Scott
dc.contributor.authorBaker, Gus
dc.contributor.authorBen Zeev, Bruria
dc.contributor.authorBolton, Jeffrey
dc.contributor.authorChaplin, John E.
dc.contributor.authorCross, J. Helen
dc.contributor.authorChan, Derrick
dc.contributor.authorGericke, Christian A.
dc.contributor.authorHusain, Aatif M.
dc.contributor.authorLally, Lorraine
dc.contributor.authorMbugua, Sharon
dc.contributor.authorMegan, Cassidy
dc.contributor.authorMesa, Tomas
dc.contributor.authorNunez, Lilia
dc.contributor.authorvon Oertzen, Tim J.
dc.contributor.authorPerucca, Emilio
dc.contributor.authorPullen, Angie
dc.contributor.authorRonen, Gabriel M.
dc.contributor.authorSajatovic, Martha
dc.contributor.authorSingh, Mamta B.
dc.contributor.authorWilmshurst, Jo M.
dc.contributor.authorWollscheid, Leonie
dc.contributor.authorBerg, Anne T.
dc.date.accessioned2025-01-20T16:18:40Z
dc.date.available2025-01-20T16:18:40Z
dc.date.issued2024
dc.description.abstractAt present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. Therefore, the International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy and their representatives to develop minimum sets of standardized outcomes and outcomes measurement methods for clinical practice that support patient-clinician decision-making and quality improvement. Consensus methods identified 20 core outcomes. Measurement tools were recommended based on their evidence of strong clinical measurement properties, feasibility, and cross-cultural applicability. The essential outcomes included many non-seizure outcomes: anxiety, depression, suicidality, memory and attention, sleep quality, functional status, and the social impact of epilepsy. The proposed set will facilitate the implementation of the use of patient-centered outcomes in daily practice, ensuring holistic care. They also encourage harmonization of outcome measurement, and if widely implemented should reduce the heterogeneity of outcome measurement, accelerate comparative research, and facilitate quality improvement efforts.
dc.fuente.origenWOS
dc.identifier.doi10.1111/epi.17971
dc.identifier.eissn1528-1167
dc.identifier.issn0013-9580
dc.identifier.urihttps://doi.org/10.1111/epi.17971
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/90658
dc.identifier.wosidWOS:001219509200001
dc.issue.numero7
dc.language.isoen
dc.pagina.final1937
dc.pagina.inicio1916
dc.revistaEpilepsia
dc.rightsacceso restringido
dc.subjectepilepsy
dc.subjectoutcomes
dc.subjectpatient-reported outcome measures
dc.subjectquality improvement
dc.subjectvalue-based health care
dc.subject.ods03 Good Health and Well-being
dc.subject.odspa03 Salud y bienestar
dc.titleDevelopment of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations
dc.typeartículo
dc.volumen65
sipa.indexWOS
sipa.trazabilidadWOS;2025-01-12
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