Association between after death caregiver reported quality of dying and patient reported quality of life during end-of-life in dyads attending to outpatient palliative care at a public hospital in Santiago, Chile

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dc.catalogadorvmv/pva
dc.contributor.advisorPérez Cruz, Pedro
dc.contributor.authorSoto Guerrero, Sebastián
dc.contributor.otherPontificia Universidad Católica de Chile. Escuela de Medicina
dc.date2025-06-30
dc.date.accessioned2023-09-29T18:24:36Z
dc.date.issued2023
dc.date.updated2023-09-28T16:48:32Z
dc.descriptionTesis (Master of Public Health)--Pontificia Universidad Católica de Chile, 2023
dc.description.abstractContext: Improving quality of dying (QOD) is key in Palliative Care (PC). It is unknown whether family caregivers (FCs) after-death assessment is associated with patient reported quality of life (QOL) during end-of-life.Objectives: To assess the relationship between family caregivers’ evaluation of the dying experience with the overall QOL that patients with advanced cancer reported during the time close to death in a Latino community.Methods: In this longitudinal study, dyads of advanced cancer patients and their FCs were enrolled from a PC Unit in Santiago, Chile. Dyads completed a baseline questionnaire and were followed-up until patients’ death. FCs were contacted to complete questionnaires regarding to death and dying experience. Simple and multivariate analysis were performed to evaluate associations of interest.Results: Two hundred eight dyads were enrolled during the study period. Of the total, seventy-seven dyads were analyzed. FCs were on average 48 years old and 70% female, while patients’ median age was 65 years, 51% being males, and the most common cancer was gastrointestinal. In the univariate analysis, FCs reported QOD was associated with patients’ QOL and with caregiver satisfaction with care. In multivariate analysis, the association between QOD and QOL remained significant.Conclusion: QOD is independently associated with patient QOL during the last month of life, when adjusted by caregiver satisfaction and caregiver depression and anxiety. Therefore, QOD could be used as a surrogate for patient QOL.
dc.description.version2024-09-30
dc.fechaingreso.objetodigital2023-09-28
dc.format.extent20 páginas sin númerar
dc.fuente.origenAutoarchivo
dc.identifier.urihttps://repositorio.uc.cl/handle/11534/74803
dc.information.autorucEscuela de medicina ; Pérez Cruz, Pedro ; 0000-0001-6265-6919 ; 4140
dc.information.autorucEscuela de medicina ; Soto Guerrero, Sebastián ; S/I ; 216645
dc.language.isoen
dc.nota.accesocontenido completo
dc.rightsacceso abierto
dc.subjectQuality of lifees_ES
dc.subjectQuality of death and dyinges_ES
dc.subjectProxieses_ES
dc.subjectSurrogatees_ES
dc.subjectFamily caregiverses_ES
dc.subject.ddc610
dc.subject.deweyMedicina y saludes_ES
dc.subject.ods03 Good health and well-being
dc.subject.odspa03 Salud y bienestar
dc.titleAssociation between after death caregiver reported quality of dying and patient reported quality of life during end-of-life in dyads attending to outpatient palliative care at a public hospital in Santiago, Chilees_ES
dc.typetesis de maestría
sipa.codpersvinculados4140
sipa.codpersvinculados216645
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