Browsing by Author "Trevino Frenk, Irene"

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    Coronavirus disease 2019 in Latin American patients with multiple sclerosis
    (ELSEVIER SCI LTD, 2021) Fragoso, Yara D.; Schiavetti, Irene; Carmisciano, Luca; Ponzano, Marta; Steinberg, Judith; Trevino Frenk, Irene; Ciampi, Ethel; Vecino, Maria Cecilia A.; Correa, Edgar P.; Carcamo Rodriguez Claudia Andrea; Gomes, Sidney; Pimentel, Maria Lucia V.; Santos, Gutemberg A. C.; Vrech, Carlos; Winckler, Thereza C. A.; Sormani, Maria Pia
    Patients with multiple sclerosis (MS) who present coronavirus disease 2019 (COVID-19) are of particular interest to neurologists. These patients have a neuroimmune disease and receive immunomodulatory or immunosuppressive therapies in the long-term. We present here data from 73 patients with MS and a confirmed diagnosis of COVID-19 from five Latin American countries. Fifteen patients (20.5%) were hospitalized and two patients died. The use of anti-CD20 therapies was the only risk factor associated to hospitalization and death. Despite the small sample size, this study highlights the awareness regarding therapeutic options for MS during the pandemic.
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    Practical issues concerning the use of optical coherence tomography in multiple sclerosis in Latin America: Discussion from 19 centres on behalf of the Foro Latam EM study group
    (2025) Ciampi Diaz, Ethel Leslie; Garcia, Lorena; Carcamo Oyarzo, Claudio Marcelo; Soler León, Bernardita María; Becker, Jefferson; Carra, Adriana; Correa-Diaz, Edgar; Cortes, Fernando; Garcia Bonitto, Juan; Guerra, Carolina; Macias, Miguel Angel; Martinez, Alejandra; Novarro, Nelson; Rivera-Sarabia, Linda; Rocha, Valeria; Rodriguez, Virginia; Sato, Douglas; Steinberg, Judith; Trevino Frenk, Irene; Vasquez, Guido; Pena, Luis
    The 2024 McDonald Criteria now include the optic nerve as the fifth topography for dissemination in space. Optical coherence tomography (OCT) is a valuable biomarker for the diagnosis, prognosis and monitoring of multiple sclerosis (MS). A panel of MS neurologists from 19 centres across 9 Latin American (LATAM) countries discussed OCT use, access, standardized protocols and research potential. They found inequities in OCT access between private (80%) and public healthcare (44%). Only 9 centres had standardized protocols, 50% of which followed the OSCAR-IB consensus criteria for retinal OCT quality assessment and 53% had a neuro-ophthalmologist. The panel concluded that OCT should be available in all MS centres and that standardized acquisition and reporting, as well as improved knowledge of OCT use, in clinical practice are necessary. OCT has significant research potential in LATAM that requires further development and implementation.
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    Practical issues concerning the use of optical coherence tomography in multiple sclerosis in Latin America: Discussion from 19 centres on behalf of the Foro Latam EM study group
    (Elsevier, 2025) Ciampi Diaz, Ethel Leslie; Garcia, Lorena; Carcamo Oyarzo, Claudio Marcelo; Soler León, Bernardita María; Becker, Jefferson; Carra, Adriana; Correa-Diaz, Edgar; Cortes, Fernando; Garcia Bonitto, Juan; Guerra, Carolina; Macias, Miguel Angel; Martinez, Alejandra; Novarro, Nelson; Rivera-Sarabia, Linda; Rocha, Valeria; Rodriguez, Virginia; Sato, Douglas; Steinberg, Judith; Trevino Frenk, Irene; Vasquez, Guido; Pena, Luis
    The 2024 McDonald Criteria now include the optic nerve as the fifth topography for dissemination in space. Optical coherence tomography (OCT) is a valuable biomarker for the diagnosis, prognosis and monitoring of multiple sclerosis (MS). A panel of MS neurologists from 19 centres across 9 Latin American (LATAM) countries discussed OCT use, access, standardized protocols and research potential. They found inequities in OCT access between private (80%) and public healthcare (44%). Only 9 centres had standardized protocols, 50% of which followed the OSCAR-IB consensus criteria for retinal OCT quality assessment and 53% had a neuro-ophthalmologist. The panel concluded that OCT should be available in all MS centres and that standardized acquisition and reporting, as well as improved knowledge of OCT use, in clinical practice are necessary. OCT has significant research potential in LATAM that requires further development and implementation.
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    Status of the neuromyelitis optica spectrum disorder in Latin America
    (ELSEVIER SCI LTD, 2021) Rivera, Victor M.; Hamuy, Fernando; Rivas, Veronica; Gracia, Fernando; Ignacio Rojas, Juan; Bichuetti, Denis Bernardi; Maria Villa, Andres; Marques, Vanessa Daccah; Soto, Arnoldo; Bertado, Brenda; Trevino Frenk, Irene; Galleguillos, Lorna; Quinones, Jairo; Ramirez, Deyanira A.; Caparo Zamalloa, Cesar; Ciampi Diaz Ethel Leslie; Lana Peixoto, Marco A.; Rodriguez, Emmanuel; Zarco, Luis; Sinay, Vladimiro; Armas, Elizabeth; Becker, Jefferson; Benzadon, Aron; Lopez, Ericka; Carnero Contentti, Edgar; Patricio Correa Diaz, Edgar; Diaz, Alejandro; Veronica Fleitas, Cynthia; Playas, Gil; Molina, Omaira; Rojas, Edgard; Sato, Douglas; Soto, Ibis; Vasquez Cespedes, Johana; Correale, Jorge; Barboza, Andres; Monterrey, Priscilla; Candelario, Awilda; Tavolini, Dario R.; Parajeles, Alexander; Pujol, Biany Santos; Diaz de la Fe, Amado; Alonso, Ricardo; Bolana, Carlos; Kagi Guzman, Marianne; Carra, Adriana; Gonzalez Gamarra, Oscar; Vera Raggio, Jose; Cesar Rodriguez, Luis; Eunice Ramirez, Nicia; Ordonez, Laura; Skromne, Eli; Lbeth Portillo, Ligia; Perez Canabal, Alfredo; Weiser, Roberto; Sirias, Vanessa; Fernandez Calderon, Ramiro; Arturo Cornejo, Ernesto; Hernandez, Marianella; Duran Quiroz, Juan Carlos; Alberto Garcia, Luis; Oviedo Cedeno, Carlos; Martinez, Jorge; Abad Herrera, Patricio
    Background: Neuromyelitis optica spectrum disorders (NMOSD) is an increasing diagnostic and therapeutic challenge in Latin America (LATAM). Despite the heterogeneity of this population, ethnic and socioeconomic commonalities exist, and epidemiologic studies from the region have had a limited geographic and population outreach. Identification of some aspects from the entire region are lacking.