Browsing by Author "Soriano, Enrique"

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    A Consensus Position Paper From REAL-PANLAR Group About the Methodological Approach for the Accreditation Process of Centers of Excellence in Rheumatoid Arthritis in Latin America
    (2019) Santos-Moreno, Pedro; Caballero-Uribe, Carlo V.; Cardiel, Mario H.; Galarza-Maldonado, Claudio; Massardo, Loreto; Pineda, Carlos; Soriano, Enrique; Alberto Castro, Carlos; Villarreal, Laura; Buitrago, Diana
    Background By 2015, the World Health Organization reported that 1% of the world population suffered from rheumatoid arthritis (RA) and in Latin America (LA) between 0.5% and 1%. Previously, in May 2014, a consensus meeting was held in Barranquilla, Colombia, where the Project for Implementation and Accreditation of Centers of Excellence (CoE) in RA in LA was established, which then became an official special group of the Pan American League of Associations for Rheumatology (PANLAR). Objective The aim of this study was to define the methodological approach for the accreditation process of CoE in RA in LA. Methods A meeting was held in April 2015 with participation of the members of the REAL-PANLAR Steering Committee, and representatives of several LA countries, with the support of 2 experts in accreditation processes and models in Colombia. Then, in November 2015 in San Francisco and in November 2016 in Washington, the REAL-PANLAR Steering Committee met to discuss some final aspects of the project. Results The following steps for accreditation were defined: application for accreditation, issuance of the concept of assessment of the entity, accreditation decision, and monitoring accreditation. Conclusions This is the second REAL-PANLAR consensus paper with the purpose to define the parameters for the accreditation process for future CoE in RA in LA.
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    Development of a novel clinimetric tool: PAtient Reported Disease Activity Index in Rheumatoid Arthritis (PARDAI-RA) by PANLAR, for the assessment of patients living with rheumatoid arthritis
    (2024) Fernandez-Avila, Daniel G.; Patino-Hernandez, Daniela; Moreno-Luna, Socorro; Brance, Lorena; Arbelaez, Alvaro; Vilar, Antonio Cachafeiro; Lozada, Carlos; Rios, Carlos; Toro, Carlos; Ramirez, Claudia; Pons-Estel, Guillermo; Ugarte-Gil, Manuel; Narvaez, Maria; Albanese, Miguel; Roa, Orlando; Ruiz, Oscar; Burgos, Paula; Xavier, Ricardo; Fuentes, Yurilis; Soriano, Enrique
    BackgroundClinical experience has shown that a single measure is not sufficient to assess disease activity in rheumatoid arthritis (RA). Various clinimetric tools are necessary to address the many clinical situations that can arise.MethodsIn order to develop a comprehensive measurement tool, the Pan American League of Associations for Rheumatology searched for the most frequent measures of disease activity applied in RA by means of a semi-systematic review of the available literature.ResultsWe found that the most frequently reported measures of disease activity were the 28-joint Disease Activity Score, C-reactive protein, and the erythrocyte sedimentation rate, followed by patient-reported measures of pain and stiffness and many other composite indices and patient-reported outcome measures. The most frequent physician-reported sign of disease was the swollen joint count, and the most frequently self-reported feature was the increase in disease activity or flares.ConclusionIn this article, we present a new clinimetric tool developed based on expert consensus and on data retrieved from our search. Disease activity can be better assessed by combining various data sources, such as clinical, laboratory, and self-reported outcomes. These variables were included in our novel clinimetric tool. Key Points center dot The goal of treatment of RA is to achieve the best possible control of inflammation, or even remission; therefore, disease management should include systematic and regular evaluation of inflammation and health status.center dot Clinimetric tools evaluate a series of variables (e.g., symptoms, functional capacity, disease severity, quality of life, disease progression) and can reveal substantial prognostic and therapeutic differences between patients.center dot Our clinimetric tool, which is based on a combination of data (e.g., clinical variables, laboratory results, PROMs), can play a relevant role in patient assessment and care.