Browsing by Author "Schaigorodsky, Lorena"

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    Barriers to healthcare access for children with congenital heart disease in eight Latin American countries
    (2024) Lopez-Barreda, Rodrigo; Schaigorodsky, Lorena; Rodriguez-Pinto, Claudia; Salas, Wilbaldo; Munoz, Yamile; Betanco, Bianca; Angulo, Oscar; Huaman, Marina; Lejbusiewicz, Gladys; Pedrero, Victor; Pavlova, Milena; Groot, Wim; Ibla, Juan C.
    BackgroundMortality from congenital heart disease has decreased considerably in the last two decades due to improvements in overall health care. However, there are barriers to access to healthcare in Latin America for this population, which could be related to factors such as healthcare system, policies, resources, geographic, cultural, educational, and psychological factors. Understanding the barriers to access to care is of paramount importance for the design and implementation of policies and facilitate the provision of care.AimThe aim of the study was to investigate the perception of barriers to access to health care on parents/guardians of children with congenital heart disease in selected Latin American countries.MethodsA descriptive, cross-sectional study, in which parents/guardians or primary caregivers of children with congenital heart disease was recruited to participate and surveyed. Once the informed consent process had been completed, a set of paper-based scales was used to collect data, namely socioeconomic and demographic information, the Barriers to Care for Children with Special Health Care Needs Questionnaire, and the General Health Questionnaire.ResultsIn total, 286 participants completed the surveys, with an average age of 34.81 years and 73.4% being female. Mean score of overall barriers was 54.45 (minimum score 39, maximum score 195, higher scores show greater perception of barriers). In Mexico, the parents/guardians of children perceived fewer barriers to access (46.69), while Peru is the country where the most barriers were perceived (69.91). Nonpoor participants showed higher overall barrier perception scores (57.34) than poor participants (52.58). The regression analysis demonstrated the overall perception of barriers was positively associated with individual and social factors, such as educational level, contract status, household monthly income, and psychological well-being and with the country of the participants.ConclusionsMultiple factors are associated with the perception of barriers to accessing health care for children with congenital heart disease, including socioeconomic status, expectations, psychological well-being, and structural factors.
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    Latin American Surgical Outcomes Study in Paediatrics (LASOS-Peds): study protocol and statistical analysis plan for a multicentre international observational cohort study
    (BMJ PUBLISHING GROUP, 2024) Quintao, Vinicius Caldeira; de Sousa, Gabriel Soares; Torborg, Alexandra; Vieira, Alexandra; Consonni, Francesco; Rodrigues, Samuel; Proenca, Julia; Carlos, Ricardo Vieira; Clemente, Marcella; Alonso, Nivaldo; Neville, Mariana; Leite, Fernanda; Tonello, Cristiano; Evans, Faye; Garcia-Marcinkiewicz, Annery; Guris, Rodrigo; Herrera, Jose; Andersen, Ana; Schaigorodsky, Lorena; Biondini, Nanci; Cajas, Ninon; Cruzat, Francisco; Cortínez, Luis Ignacio; Giraldo, Marisol; Valle, Alioth; Pozo, Cristian; Betancourt, Ana; Echeto, Maria Alejandra; Dominguez, Alma; Sarmiento, Lina; Gonzalez, Kenya; Abrego, Gesely; Leguizamon, Lorena; Paula, Leila; Lauber, Clarisa; Lopez, Gabriela; Biccard, Bruce M.; Carmona, Maria Jose; Hajjar, Ludhmila Abrahao
    Introduction Surgery is a cost-effective public health intervention. Access to safe surgery is a basic human right. However, there are still significant disparities in the access to and safety of surgical and anaesthesia care between low-income and middle-income countries and high-income countries. The Latin American Surgical Outcomes Study in Paediatrics (LASOS-Peds) is an international, observational, 14-day cohort study to investigate the incidence of 30-day in-hospital complications following elective or emergency paediatric surgery in Latin American countries.Methods and analysis LASOS-Peds is a prospective, international, multicentre observational study of paediatric patients undergoing both elective and non-elective surgeries and procedures, inpatient and outpatient, including those performed outside the operating room. The primary outcome is the incidence of in-hospital postoperative complications up to 30 days after surgery. Secondary outcomes include intraoperative complications and the need for intensive care unit admission.Ethics and dissemination This study received approval from the Institutional Review Board of the coordinating centre (Hospital das Cl & iacute;nicas, Faculdade de Medicina, Universidade de S & atilde;o Paulo) as well as from all the participating centres. The study results are expected to be published in peer-reviewed journals and disseminated at international conferences.Trial registration number NCT05934682.