Browsing by Author "Patino-Hernandez, Daniela"

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    Current status of the rheumatologists' workforce in Latin America: a PANLAR collaborative study
    (2021) Gerardo Fernandez-Avila, Daniel; Patino-Hernandez, Daniela; Kowalskii, Sergio; Vargas-Caselles, Alfredo; Sapag, Ana Maria; Cachafeiro-Vilar, Antonio; Melendez-Munoz, Lucia; Santiago-Pastelin, Carlos; Graf, Cesar; Rossetto, Chayanne; Palleiro, Daniel; Trincado, Daniela; Fernandez-Avila, Diana; Arrieta, Dina; Reyes, Gil; Baez, Jossiel Then; Ugarte-Gil, Manuel F.; Cardiel, Mario; Colman, Nelly; Chavez, Nilmo; Burgos, Paula, I; Montufar, Ruben; Sandino, Sayonara; Fuentes-Silva, Yurilis; Soriano, Enrique R.
    Introduction Studies conducted by various scientific societies have shown that the demand for specialized rheumatology care is greater than the projected growth of the workforce. Our research aims to assess the current status of the rheumatology workforce in Latin America.
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    Development of a novel clinimetric tool: PAtient Reported Disease Activity Index in Rheumatoid Arthritis (PARDAI-RA) by PANLAR, for the assessment of patients living with rheumatoid arthritis
    (2024) Fernandez-Avila, Daniel G.; Patino-Hernandez, Daniela; Moreno-Luna, Socorro; Brance, Lorena; Arbelaez, Alvaro; Vilar, Antonio Cachafeiro; Lozada, Carlos; Rios, Carlos; Toro, Carlos; Ramirez, Claudia; Pons-Estel, Guillermo; Ugarte-Gil, Manuel; Narvaez, Maria; Albanese, Miguel; Roa, Orlando; Ruiz, Oscar; Burgos, Paula; Xavier, Ricardo; Fuentes, Yurilis; Soriano, Enrique
    BackgroundClinical experience has shown that a single measure is not sufficient to assess disease activity in rheumatoid arthritis (RA). Various clinimetric tools are necessary to address the many clinical situations that can arise.MethodsIn order to develop a comprehensive measurement tool, the Pan American League of Associations for Rheumatology searched for the most frequent measures of disease activity applied in RA by means of a semi-systematic review of the available literature.ResultsWe found that the most frequently reported measures of disease activity were the 28-joint Disease Activity Score, C-reactive protein, and the erythrocyte sedimentation rate, followed by patient-reported measures of pain and stiffness and many other composite indices and patient-reported outcome measures. The most frequent physician-reported sign of disease was the swollen joint count, and the most frequently self-reported feature was the increase in disease activity or flares.ConclusionIn this article, we present a new clinimetric tool developed based on expert consensus and on data retrieved from our search. Disease activity can be better assessed by combining various data sources, such as clinical, laboratory, and self-reported outcomes. These variables were included in our novel clinimetric tool. Key Points center dot The goal of treatment of RA is to achieve the best possible control of inflammation, or even remission; therefore, disease management should include systematic and regular evaluation of inflammation and health status.center dot Clinimetric tools evaluate a series of variables (e.g., symptoms, functional capacity, disease severity, quality of life, disease progression) and can reveal substantial prognostic and therapeutic differences between patients.center dot Our clinimetric tool, which is based on a combination of data (e.g., clinical variables, laboratory results, PROMs), can play a relevant role in patient assessment and care.
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    Rheumatology Training in Latin America A Collaborative Study by the Pan American League of Associations for Rheumatology
    (2022) Fernandez-Avila, Daniel G.; Patino-Hernandez, Daniela; Kowalskii, Sergio; Vargas-Caselles, Alfredo; Sapag, Ana Maria; Cachafeiro-Vilar, Antonio; Melendez, Belia; Santiago-Pastelin, Carlos; Graf, Cesar; Rossetto, Chayanne; Palleiro, Daniel; Trincado, Daniela; Fernandez-Avila, Diana Carolina; Arrieta, Dina; Reyes, Gil; Baez, Jossiel Then; Ugarte-Gil, Manuel F.; Cardiel, Mario; Colman, Nelly; Chavez, Nilmo; Burgos, Paula, I; Montufar, Ruben; Sandino, Sayonara; Fuentes-Silva, Yurilis; Soriano, Enrique R.
    Background/Objective Demand for rheumatology care has steadily increased in recent years. The number of specialists in this field, however, seems insufficient. No recent studies have diagnosed the attributes of rheumatology training in Latin America. Methods This is a descriptive cross-sectional study. We obtained data on each country through local rheumatologists of the Pan-American League Against Rheumatism, who acted as principal investigators for participating countries. Our sample was analyzed and described through means and standard deviations or through frequencies and percentages, depending on the variable. Results Countries with the most rheumatology-training programs were Brazil (n = 50), Argentina (n = 18), and Mexico (n = 15). Ecuador, Honduras, and Nicaragua do not have rheumatology-training programs. The countries with the most available slots for rheumatology residents were Brazil (n = 126) and Argentina (n = 36). To be admitted into rheumatology training, candidates were required to have completed graduate studies in internal medicine in 42.1% of the programs. In 8 countries (42.1%), residents are not required to pay tuition; the median cost of tuition in the remaining countries is US $528 (interquartile range, US $2153). Conclusions Conditions associated with rheumatology training in Latin America vary. Significant differences exist in income and tuition fees for residents, for example, and 4 countries in Latin America do not currently offer programs. Information collected in this study will be useful when comparing the status of rheumatology services offered in Latin America with those in other countries. Most countries require a wider offering of rheumatology-training programs, as well as more available slots.