Browsing by Author "Luyckx, Koen"

Now showing 1 - 2 of 2
  • No Thumbnail Available
    Item
    Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease
    (2022) Van Bulck, Liesbet; Kovacs, Adrienne H.; Goossens, Eva; Luyckx, Koen; Zaidi, Ali; Wang, Jou-Kou; Yadeta, Dejuma; Windram, Jonathan; Van De Bruaene, Alexander; Thomet, Corina; Thambo, Jean-Benoit; Taunton, Marshall; Sasikumar, Navaneetha; Sandberg, Camilla; Saidi, Arwa; Rutz, Tobias; Ortiz, Lucia; Mwita, Julius Chacha; Moon, Ju Ryoung; Menahem, Samuel; Mattsson, Eva; Mandalenakis, Zacharias; Mahadevan, Vaikom S.; Lykkeberg, Birgitte; Leye, Mohamed; Leong, Ming Chern; Ladouceur, Magalie; Ladak, Laila Akbar; Kim, Yuli; Khairy, Paul; Kaneva, Anna; Johansson, Bengt; Jackson, Jamie L.; Giannakoulas, George; Gabriel, Harald; Fernandes, Susan M.; Enomoto, Junko; Demir, Fatma; de Hosson, Michele; Constantine, Andrew; Coats, Louise; Christersson, Christina; Cedars, Ari; Caruana, Maryanne; Callus, Edward; Brainard, Sarah; Bouchardy, Judith; Boer, Anna; Reyes, Fernando Baraona; Areias, Maria Emilia; Araujo, John Jairo; Andresen, Brith; Amedro, Pascal; Ambassa, Jean-Claude; Amaral, Fernando; Alday, Luis; Moons, Philip
    Background: In recent years, patient-reported outcomes (PROs) have received increasing prominence in cardio-vascular research and clinical care. An understanding of the variability and global experience of PROs in adults with congenital heart disease (CHD), however, is still lacking. Moreover, information on epidemiological characteristics and the frailty phenotype of older adults with CHD is minimal. The APPROACH-IS II study was established to address these knowledge gaps. This paper presents the design and methodology of APPROACH-IS II.Methods/design: APPROACH-IS II is a cross-sectional global multicentric study that includes Part 1 (assessing PROs) and Part 2 (investigating the frailty phenotype of older adults). With 53 participating centers, located in 32 countries across six continents, the aim is to enroll 8000 patients with CHD. In Part 1, self-report surveys are used to collect data on PROs (e.g., quality of life, perceived health, depressive symptoms, autonomy support), and explanatory variables (e.g., social support, stigma, illness identity, empowerment). In Part 2, the cognitive functioning and frailty phenotype of older adults are measured using validated assessments.Discussion: APPROACH-IS II will generate a rich dataset representing the international experience of individuals in adult CHD care. The results of this project will provide a global view of PROs and the frailty phenotype of adults with CHD and will thereby address important knowledge gaps. Undoubtedly, the project will contribute to the overarching aim of improving optimal living and care provision for adults with CHD.
  • No Thumbnail Available
    Item
    Which national group will I identify myself with? The role of preferred and perceived identity representations
    (2013) Duriez, Bart; Reijerse, Arjan; Luyckx, Koen; Vanbeselaere, Norbert; Meeus, Joke
    Research shows that the more people identify with a national in-group, the more their citizenship representation becomes in line with the citizenship discourse attached to this national-identity. However, although national identification may lead to a preference for a specific citizenship representation, national identification might itself depend on preexisting citizenship representation preferences. In line with this, a longitudinal study among Flemish-Belgian high-school students (N = 275) showed reciprocal relations between national identification and citizenship representation. A second study among Flemish-Belgian high-school students (N = 407) then showed that strength of national identification does not simply depend on preexisting citizenship representation preferences but on the (mis) match between such preferences and the citizenship representation perceived to be attached to a national-identity. In addition, results showed that the relation between national identification and out-group attitudes depends on the national-identity under consideration.