Browsing by Author "Carnero Contentti, Edgar"
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- ItemResearch priorities in multiple sclerosis in Latin America: A multi-stakeholder call to action to improve patients care Research priorities in MS in LATAM(2021) Rojas, Juan, I; Carnero Contentti, Edgar; Abad, Patricio; Aguayo, Adriana; Alonso, Ricardo; Bauer, Johana; Becker, Jefferson; Bustos, Andrea K.; Carcamo, Claudia A.; Carra, Adriana; Correa Diaz, Edgard P.; Correale, Jorge; Cristiano, Edgardo; Diaz, Alejandro J.; Fernandez Liguori, Nora; Flores, Jose; Fruns, Manuel; Garcea, Orlando; Giachello, Susana M.; Godoy, Melisa D.; Gracia, Fernando; Hamuy, Victor F.; Henestroza, Paula R.; Navarra, Javier A.; Navas, Carlos; Patrucco, Liliana; Perez Bruno, Magdalena; Prato, Andrea S.; Rivera, Victor M.; Rosa Martinez, Alma R.; Vanotti, Sandra; Vazquez, Macarena; Vizcarra, Darwin; Ysrraelit, Maria C.; Alonso Serena, MarinaAs human and economic resources are limited, especially in Latin America (LATAM), it is important to identify research priorities to improve multiple sclerosis (MS) patients care in the region. The objective was to generate a multidisciplinary consensus on research priorities in MS for patients care in LATAM by involving healthcare professionals and MS patient associations. Methods: consensus was reached through a four-step modified Delphi method designed to identify and rate research priorities in MS in LATAM. The process consisted of two qualitative assessments, a general ranking phase and a consensus meeting followed by a more detailed ranking phase Results: a total of 62 participants (35 neurologists, 4 nurses, 12 kinesiologists, 7 neuropsychologists and 4 patient association members) developed the process. At the final ranking stage following the consensus meeting, each participant provided their final rankings, and the top priority research questions were outlined. 11 research priorities were identified focusing on healthcare access, costs of the disease, physical and cognitive evaluation and rehabilitation, quality of life, symptoms management, prognostic factors, the need of MS care units and patient's management in emergencies like COVID-19. Conclusion: this work establishes MS research priorities in LATAM from multiple perspectives. To pursue the actions suggested could launch the drive to obtain information that will help us to better understand the disease in our region and, especially, to better care for affected patients.
- ItemStatus of the neuromyelitis optica spectrum disorder in Latin America(ELSEVIER SCI LTD, 2021) Rivera, Victor M.; Hamuy, Fernando; Rivas, Veronica; Gracia, Fernando; Ignacio Rojas, Juan; Bichuetti, Denis Bernardi; Maria Villa, Andres; Marques, Vanessa Daccah; Soto, Arnoldo; Bertado, Brenda; Trevino Frenk, Irene; Galleguillos, Lorna; Quinones, Jairo; Ramirez, Deyanira A.; Caparo Zamalloa, Cesar; Ciampi Diaz Ethel Leslie; Lana Peixoto, Marco A.; Rodriguez, Emmanuel; Zarco, Luis; Sinay, Vladimiro; Armas, Elizabeth; Becker, Jefferson; Benzadon, Aron; Lopez, Ericka; Carnero Contentti, Edgar; Patricio Correa Diaz, Edgar; Diaz, Alejandro; Veronica Fleitas, Cynthia; Playas, Gil; Molina, Omaira; Rojas, Edgard; Sato, Douglas; Soto, Ibis; Vasquez Cespedes, Johana; Correale, Jorge; Barboza, Andres; Monterrey, Priscilla; Candelario, Awilda; Tavolini, Dario R.; Parajeles, Alexander; Pujol, Biany Santos; Diaz de la Fe, Amado; Alonso, Ricardo; Bolana, Carlos; Kagi Guzman, Marianne; Carra, Adriana; Gonzalez Gamarra, Oscar; Vera Raggio, Jose; Cesar Rodriguez, Luis; Eunice Ramirez, Nicia; Ordonez, Laura; Skromne, Eli; Lbeth Portillo, Ligia; Perez Canabal, Alfredo; Weiser, Roberto; Sirias, Vanessa; Fernandez Calderon, Ramiro; Arturo Cornejo, Ernesto; Hernandez, Marianella; Duran Quiroz, Juan Carlos; Alberto Garcia, Luis; Oviedo Cedeno, Carlos; Martinez, Jorge; Abad Herrera, PatricioBackground: Neuromyelitis optica spectrum disorders (NMOSD) is an increasing diagnostic and therapeutic challenge in Latin America (LATAM). Despite the heterogeneity of this population, ethnic and socioeconomic commonalities exist, and epidemiologic studies from the region have had a limited geographic and population outreach. Identification of some aspects from the entire region are lacking.